Special Children – Spinal Muscular Atrophy

image Meet Elizabeth and all of her friends with SMA. Learn about clinical studies, flying with a special child and more.

"Spinal Muscular Atrophy is the #1 genetic killer of children under age two.  It is a group of inherited and sometimes fatal diseases that destroys the nerves controlling voluntary movement.  This affects crawling, walking, head and neck control, and even swallowing.

One in 6,000 babies is afflicted with SMA, and 50% of those diagnosed before age 2 will die before their first birthday.

One in 40 people are carriers of the SMA gene."

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